Rare Disorders Resources
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914) 428-7100
Fax: (914) 997-4763
Tel: (888) 663-4637
Email: Askus@marchofdimes.com
Internet: www.marchofdimes.com
National Mental Health Consumers’ Self-Help Clearinghouse
1211 Chestnut Street, Suite 1207
Philadelphia, PA 19107-6312
Tel: (212) 751-1810
Fax: (215) 636-6312
Email: info@mhselfhelp.org
Internet: www.mhselfhelp.org
National Mental Health Association
2001 North Beauregard Street, 12th Floor
Alexandria, VA 22311
Tel: (703) 684-7722
Fax: (703) 684-5968
Tel: (800) 969-6642
TDD: (800) 433-5959
Email: inforctr@nmha.org
Internet: www.nmha.org
National Alliance for the Mentally Ill
Colonial Place Three
2107 Wilson Boulevard, Suite 300
Arlington, VA 22201-3042
Tel: (703) 524-7600
Fax: (703) 524-9094
Tel: (800) 999-6264
TDD: (703) 516-7227
Email: membership@nami.org
Internet: www.nami.org
NIH/National Institute of Mental Health
6001 Executive Boulevard, Rm 8184, MSC 9663
Rockville, MD 20892-9663
Tel: (301) 443-4513
Email: nimhinfo@hih.gov
Internet: www.nimh.nih.gov/
UNIQUE – Rare Chromosome Disorder Support Group
P.O. Box 2189
Caterham
Surrey, Intl CR3 5GN
Tel: 44 0 1883 330766
Fax: 44 0 1883 330766
Email: infor@rarechromo.org
Internet: www.rarechromo.org
National Organization for Rare Disorders
P.O. Box 8923
New Fairfield, CT 06812-8923
Tel: (203) 746-6518
Email: orphan@rarediseases.org
Internet: http://www.rarediseases.org
Center for Health Improvement
1330 21st Street, Suite 100
Sacramento, CA 95814
Tel: 916) 930-9200
Huntington’s Disease Society of America
505 Eighth Avenue, Suite 902
New York, NY 10018
Tel: (212) 242-1968
Email: hdsainfo@hdsa.org
Alzheimer’s Foundation of America
322 8th Avenue, 6th Floor
New York, NY 10001
Tel: (866)AFA-8484
Tel: (866)232-8484
Internet: www.alzfdn.org/
National Stroke Association
Tel: (800) STROKES
Tel: (800 787-6537
Internet: www.stroke.org
The Leeza Gibbons Memory Foundation
3050 Biscayne Boulevard, Suite 908
Miami, FL 33137
Tel: (888) OK-Leeza
Email: info@leezasplace.org
Internet: www.leezasplace.org
Huntington’s Disease Society of America
505 Eighth Avenue, Suite 902
New York, NY 10018
Tel: (212) 242-1968
Tel: (800) 345-HDSA (4372)
Fax: (212) 239-3430
Email: hdsainfo@hdsa.org
Internet: www.hdsainfo@hdsa.org